Ana’s been doing great over the last couple months… She’s really putting in a lot of effort this year at school, the 8th grade is a huge year. She’s on a pass/no-pass based on a recommendation from an evaluation she had last spring and from the teachers impression of how she was reacting to having a normal workload this year.
This fall she has a new set of hearing aids the lingering side effect of the chemotherapy she was on hasn’t resolved itself and from the reading we’ve done it may not go back to “normal”. She’s adjusting to the use of them, however getting her to use them at home is a bit of an issue as she really just wants to keep them in use while at school.
As I logged in today I noticed 3 different posts I was working on before but never finished or published… Most of it talks about her different appointments she’s had since the Spring/Summer. I’ll go though and edit and post those later. I’m mentioning these now because there are a couple of topics I’m going to get into where those posts would be helpful. ie growth hormone, MRI’s and general overall health.
Ana’s always been at the lower end of the growth scale since we can remember… however the tumor tossed an extra roadblock in the way recently. So when the idea of putting her on growth hormone was an interesting and difficult choice. But we forged ahead because she wanted nothing more than to grow and to not have another something of her life stolen by the tumor. So she started in April on the shots and has only missed one shot to date… and she’s growing! Not by leaps and bounds, but she’s growing… where she did no growth at all from 2006 to this spring. Where a normal 12-14 year old would grow a ton. She’s on track for growing 3 inches from July 08 to July 09, but I think with the recent spurt she might go a little more She is having a slight issue with her right pinky finger where the tendons and muscles aren’t caught up yet and she has a slight bend in that last nuckle. It doesn’t hurt to move it straight but she is going to be starting some PT next week to get it looked at and managed.
The Tumoris doing great as we can expect for still being there… but with it not growing and remaining stable she’s got the green light to a year without another MRI. Every-time she has a headache or has a bad day we wonder if that wait till next summer is the wisest of ideas but we have our faith in the medical team and go with there recommendations.
Ana does have days where she gets tired more easily than others and has a hard time controlling her ever present double vision. (normally she controls it with the tilt of her head) She had one of those days a week or so ago but to help that were trying go get the 14year old to bed earlier, not such an easy thing to get done
After the Jump I have an update on how the rest of the family is doing and some photos of Ana, Nissa and Ana’s dog Carson.