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Archive for September, 2006

Back to School after Chemo Round 2

Tuesday, September 12th, 2006

Ana made a great effort at going to school today. She made it a little over half the day today then she called it a day. I picked her up from school just after lunch after words she took a nice nap and felt much better.

Hopefully she should last the whole day Tuesday.

Chemotherapy Round 2

Saturday, September 9th, 2006

Ana Getting ChemoInteresting visit to the clinic/hospital, we got to meet with the Social worker there and talked at length about a number of things. She was very amazed at how far we had gotten without speaking to her in the past. However one interesting came up that I was going to ask about anyways because of a suggestion made here was about was The Make a Wish Foundation. The guidelines have changed greatly, as it’s not just for terminally ill children any longer. So we filled out the application/information sheet on that and we should be hearing from them sometime in the near future.

Ana started thinking about her wish and first she started talking about just an autographed picture of Chad Kruger from Nickleback but we told her that she could think a little bigger. Then she started well maybe a dog, she went on about how she’s always wanted a dog like “Lady” from “Lady and the Tramp”, at that point I had to leave the room as I’ve been very firm footed on the fact that I do not want a dog. I grew up with lizards, snakes, large birds, cats and stuff. Never growing up while I was at home did we have a dog, so I’m not a dog person.

I’ll be showing her the Make a wish site later this weekend and she will have a better understanding of what’s possible when you have an organization that really works to make your wish possible.

Chemo BagAnother interesting program Ana was started on is the Beads of Courage. Basically how it works is for different events that happen over the course of her treatment she gets a bead to add to her string. For example she got a White bead for the chemotherapy, for her Port access she got a black bead with Silver lines on it and a blue bead for the clinic visit. She also got beads for all her past visits and therapies since this started, so her collection is impressive already.

From there her dose of antibiotic got raised from one pill every Monday and Tuesday to 2 pills on those days.

Then Doctor Mortel was going to get us a view from the latest MRI so I could show that to everyone, however something came up and he had to leave the building. So I’ll be sending a couple photos to the Life specialist and I’ll ask her to help me out and get me a copy of that MRI.

First day of school

Thursday, September 7th, 2006

first-day-of-school-06.pngToday was the girls first day back at school… Most parents are naturally worried about sending the kids off every fall however this fall has been extra difficult.  However the school staff has been very supportive knowing as little as they knew going into this.  So today we had a conference call with Dr. Mortel with a couple of Ana’s teachers, the school nurses, and the Principle.

Going into the meeting we thought the doctor would just want a restriction on gym and get her excused from any part of gym that included objects either running or being thrown at her.  Much to our surprise he wanted her in no way in a gym class with a full roster of kids!  Which was fine by us, just a little more than we expected.  It’s our guess he’s worried about the worst case scenario even on the easiest of gym activities.  Ana was relieved as now she shouldn’t have to do the half mile run. (more…)