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Chemo and the kidney’s

Saturday, March 31st, 2007

I spoke before how we almost felt we were on automatic for dealing with chemo and what was Instore for dealing with everything.

Last week at chemo we found out that Ana’s kidney function had gone down even further.

So her dose of carboplatin was cut in half. It’s also enough of an issue that her fluid intake needs to be doubled. The hope is there be no long term damage to her kidney’s.

At this point we’re just pushing water like crazy and Ana is upset that she can’t drink pop except in smaller amounts.

We have chemo again April 20th and 2 days before that another kidney (GFR) test. In the mail today we got the date of her next MRI & clinic visit.

Thank you for your thoughts and prayers!

Peter

Ana the bounce back girl… just in time for Chemo again.

Tuesday, March 20th, 2007

We’ll things have been a complete repeat of last month… One day she’s down LOW LOW low on her blood counts then a couple days later there back to decent levels.

At the moment she has staff at both Childrens Hospital and St. Lukes confused as to how she does it.  Normally when those Hemoglobin numbers start getting into the low to mid 7’s they keep going down and you get into  spot where she was in January needing blood.  So everyone was reading the paperwork for another transfusion this last week and amazingly her counts jumped back into the Mid range for being “ok” which was 8.6 on her hemoglobin counts and her platelets went from 62 thousand to 120 thousand or so.  And the second count where they went up were counted by hand which I guess is much more accurate than the computerized method.

The tooth fairy’s gonna cost me…

Needing this second count this week nearly made her miss another dentist appointment which she was suppose to have last month but her platelets were to low… The risk of bleeding while at the dentist was to great.  But Children’s has been pushing us to get her looked at by a dentist because of what the chemo drug she’s on does to teeth. So they told us to get a light cleaning above the gums and exam. Which went fine… Other than about 7 teeth that need to come out she’s in good shape.  Those teeth are baby’s that are being broken by the incoming adult teeth.  Which the dentist would have been more than happy to take out IF her platelets were in a more normal range.

More extra tests…kinda.

last Month Ana had her bi-monthly GFR test which measures kidney function and last month she was just at the low end of normal so Wednesday we have to do another test this month…  Which means a couple days in the Twin Cities again.  We wont find out the results of this test till Friday.

Lastly for today…

When Ana was asked by the nurse who took her blood on Friday for the CBC count at how her counts go back up they way they do… Ana Replied “it’s the 2 bags of microwave popcorn I eat every day”

BTW, She would eat 3 if we let her…

Blood Counts… and only a week till Chemo again.

Sunday, February 18th, 2007

Ana’s had a rough week!  Tuesday (Feb.13th) her platelets were down to 20K but her Hebagolbin was at 8.6, so Dr. Mortel ordered another count for Friday. Because her Platelets need to be at 100K to get chemo again.  So ofcourse we ask the question what can we do to help this number go up.  We found out there isn’t much you can do in the way of doing something to make these platelets go up.

The platelets in your blood is what keeps you from bleeding to death if you get a cut.  Tuesday after the count it took a while for the bleeding to stop from the area around her port.   She’s also been brusing very easily from having a low platelet count, another common side effect.

So Friday came and we went in for another count and thankfully her platelets jumped up to 52K!  So in about 3 days she gained 32K in platelets.  The downside was that her hemoglobin dropped to 7.2!  So we have to go back tomorrow for another count to see where that numbers at.  If it’s at the same level or lower she’ll need another blood transfusion.  So it’s been a pretty low key weekend here to help her rest and help her body do what it needs to get over this. She should also get a good amount of rest this week as the girls have a week off of school this week. Sara and I are already ready to send Anneissa back to school!
Wednesday she has another GFR test to see how her kidneys are doing and if her Carboplatin (chemo drug) needs to be adjusted.  So far those counts have been good in the past.  But Ana seems to be one of those patients who seem to get the best and worst side effects of these drugs.