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Archive for the 'Medical Updates' Category

A Mixed Bag of News…

Wednesday, February 7th, 2007

OH today was a hard day go get though… despite what I thought about what would happen today nothing went as planned/hoped.

First of all our MRI time got bumped around because of an emergency MRI that had to happen. We got done with our MRI barely 20 minutes before we were suppose to meet with the team of doctors. So we skipped lunch not a huge issue at the time as we were all to nervous to eat.

Our first bump in the road came as Ana has lost another pound in a half in the last week and a half weighing in at 62.5 pounds down from 64 pounds on January 26th. Her sleep specialist, is confident that it’s the Riddlin that is the cause of her decline in weight.  Last July she was 62 pounds and at her peak this fall she was 78 pounds.
Next came in Doctor Mortel and we got to see the MRI results. The tumor is still there… not so much smaller than the November MRI, it shows some signs that it may be scar tissue.  Which won’t go away and will need to be watched.  The  plan is to keep going with chemo till the end of June and do another MRI at that time.

We then asked about the ongoing care at that time and what was the future after June. It looks like for the next 7 years we will be doing either annual or bi-annual MRI’s.  Because the chances of the tumor returning is a possibility.

Ana's MRI Feb 7th.Doctor Mortel is also putting Ana back on the steroid she was on this summer/fall Dexamethasone.  Not at the level she was before but only for 5 days every month during the week of chemo.  Like most chemo patients, she doesn’t have much of an appetite after chemo and this should give her a boost during that time.  This should also resolve the issue with the weight loss for the time being, since taking her off of the riddlin isn’t something we want to consider.

So as we thought Ana was not happy about the addition of 2 more pills and another 4 months of chemo to look forward too! And she really doesn’t want to be on Dexamethasone again… but Doctor promised her that the dose is low enough and short enough to not cause the same puffing up that happen before.

Thank you everyone!

Tomorrow is MRI #4 (Wednesday Feb. 7th)

Tuesday, February 6th, 2007

Well the last couple weeks have gone rather well. I’ve been very very busy. However, Ana’s been in great spirits and healthy since the blood transfusion.

We’re all excited about the scan tomorrow. Sara and I are ready for whatever news comes out of this MRI and clinic visit.

Ana is convinced that she’s done with chemo and this whole episode of her life… We’ll she did get a tad upset that she still has a couple sessions of chemo even if the tumor is gone or nearly gone.

On another note… I had to see the doctor last week and Ana was home because it was just a couple days after chemo.  So I brought her with to get her out of the house and after about 20minutes our primary doctor looked at her notes and says “OH sorry Peter this is your appointment.”  She was rather wrapped up in getting a full update from Ana on her treatment.

She has this thing about making a real impact on the people she meets…

Post Blood Transfusion

Monday, January 22nd, 2007

Well Wednesday afternoon Ana did very well after the infusion of new blood. She had a bit of spunk back and her color returned to normal. The next day she tried to go back to school however it just proved to much for her and she came home shortly after being there nearly an hour. Thankfully the girls both had Friday off from school so it gave her an extra day to get back to normal.From what were told she can have possible side-effects for a couple weeks. So hopefully we won’t see any of those pop-up anytime soon.

Beyond that this was the first weekend since before Christmas that almost seemed normal. Today Ana had some friends from school stop by and they played the Wii for a couple hours making Mii’s of people in school. The things that 12 year olds find fun. I hid downstairs in my office shredding paper, looking rather busy. When Sara asked if I got a lot of work done, I replied with “Heck no I was keeping myself out of the girls way”.

I also wanted to say thank you to everyone who made donations over the weekend… It means a lot!

(The photo was taken when I picked up the girls from the Cancer center at St. Lukes.)