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Another Growth test, Appointments and Surgry this week.

December 11th, 2007

So the meeting with Doctor Mortel that week of Thanksgiving… went very well.  Ana did talk to him just as we thought she would the vision issues. He noticed that she was looking off to the left in her left eye more than should be, enough to be causing the double vision issues. So the outcome of that visit was that we’d start seeing the other doctors in her team to help figure out what are our options for correcting her vision or making adaptations.

Sunday we started a test that will see if she needs hormone replacement therapy.   The test is an IGF-1, we get the blood draw on Thursday and I’m not sure the time line for the test results.

Wednesday the 12th, we have the appointments with the new doctor team at the University of Minnesota… We’re looking forward to meeting with them.

Thursday is the big day… Ana get’s her port removed and she is also having the mole on her face taken off as well. I’ll be sure to post photos of before and after

We are having a number of car issues so any additional help would be great!

Ana hasn’t grown in the last year but she sure has changed!

November 19th, 2007

After my posting last week I had nearly forgot how much I enjoy posting on the site! It also made me think I haven’t posted any photos recently. SO here are some photos to help catch everyone up. I’ll have to redo the header for the site soon as she really doesn’t look like that anymore. People that know Ana and missed that time, don’t believe that she was actually chunky once because of the steroids.

Ana Fall photos 06 & 07the left side was Fall of ’07 and the photo on the right was taken in the fall of ’06

The last of the Tooth-Fairy
Ana Had 7 teeth pulled last month… Amazingly she lost no hair or teeth over the last year while on chemo. Teeth aren’t something people generally loose while on chemo but to be 13 and still have a good number of baby teeth isn’t common either.

img00034.jpgThose baby teeth gotta go!After the dentist

Downtime while down for appointments.
Since St. Paul Children’s isn’t far from the Mall of America we find ourselves there to relax quite often.

Ana and Nissa after libby lu Ana and Grandma img00059.jpg

Ana the Boxer?
Ana has found a most unsual passion… the sport of Boxing? She got the ok from the doctor but no head shots. Unfortunately we don’t have a good and regular afternoon we can get her to lessions. Hopefully after the holiday’s we can get a regular day down. But the owner of the Gym did give her a punching bag and gloves for her birthday and she practices on that.

Ana Boxing with Chuck Horton Ana Boxing with Chuck HortonAna Boxing with Chuck HortonAna Boxing with Chuck Horton

Question of the day… How’s Ana doing?

November 15th, 2007

She’s going GREAT overall!  Since I’ve last written she’s had 2 more MRI’s neither have showed any sign of growth and the area around the tumor is looking good as well.  The tumor is now considered “stable”, I guess we don’t use the word remission any longer, it’s not PC. 

But I mentioned overall, so that of course means there are things not going so well. Tonight I’m writing from St. Paul she has test tomorrow to check her pituitary gland.  Since it’s near where the tumor was and she hasn’t gown at all in the last year there is some concern that it may not be working any longer.  For the test they’ll give her a solution that will lower her blood pressure and blood sugar, which should activate the gland into production. So were crossing our fingers on that… 

Next week we are heading down to the Twin Cities again to meet with Dr. Moertel. We haven’t seen him since March or so… He left Children’s to work for the University of Minnesota, and his non-compete is over, so we are looking forward to our visit with him next week. 

Our goal is that he’ll hopefully shed some light on Ana’s ongoing double vision.  Something that’s still a thorn in her side, and were not getting answers on from the staff that have taken over since his absence.  She has a lot of trust in him and hopefully she’s going to talk to him a little more than us about her vision issues.

I’ll find time to post more about what’s been going on at home soon… I promise a bit more regularity, it’s just hard with trying to get my workload done the thought of sitting at the computer for anything that I can’t bill for is a hard.